Medical Professionals

Designer Genes of North Dakota welcomes the opportunity to discuss how we can best serve our North Dakota medical professionals as you care for families who are receiving or have received a diagnosis of Down syndrome. To partner with us in support of these families, please contact Kendra Vander Wal at info@designergenesnd.com.

Logo for Project Carson featuring a stylized white footprint with a heart-shaped heel on a brown background, with text indicating outreach to new parents with prenatal or at birth diagnosis.

What Happens When You Connect With Project Carson? 

Once a referral is made to the Project Carson team, (either by faxing the referral form below or by making a call to 1-888-522-9654) you will receive a call from a representative of Project Carson.
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The person contacting you can answer questions and provide information to help you better navigate this sometimes confusing time, making sure your family has the support it needs to walk down this unexpected path.

Project Carson Brochure
​Project Carson Referral Form

Project Carson is Sponsored By:

Family Voices of North Dakota logo with red heart and black text, tagline 'Navigating Crossroads to Hope'.
Logo for Designer Genes, a support network for Down syndrome, featuring a stylized DNA strand with a person at the top and text in gold and blue.

Caring for the Patient

Child and Adolescent Care
When caring for children and adolescents with Down syndrome, we recommend referring to the Health Supervision for Children and Adolescents With Down Syndrome article published in Pediatrics (May 2022).

Adult Care
When caring for adults with Down syndrome, we recommend referencing current research by the GLOBAL Down Syndrome Foundation in the 2020 article, Medical Care of Adults With Down Syndrome, or visiting their website.

Delivering a Diagnosis

Thank you for taking the time to research how to provide individuals with Down syndrome and their families in North Dakota with information, resources and support that they need. Designer Genes of North Dakota can provide support.

​If you are a medical professional, you can connect a new or expectant family Designer Genes in the following ways:

Designer Genes of North Dakota

Project Carson (referral source)

  • For information on Project Carson, call 1-888-522-9654

  • Fill our Referral Form linked below and send to:

    • Fax: 701-493-2635

    • Mail: P.O. Box 163, Edgeley, ND 58433

Project Carson

Project Carson is an outreach tool that offers support for new parents with prenatal or at birth diagnosis. Project Carson is sponsored by Designer Genes of Bismarck and Family Voices of North Dakota.

Project Carson offers support through a partnership of professionals, organizations, and parents who have personal experience in receiving a prenatal or at birth diagnosis. The goal is to assure that families receiving a diagnosis, whether it be before or at birth, have access to a support network of parents and organizations that understand the emotions, joys and challenges that come with the word “diagnosis.”
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As a parent-to-parent support program Project Carson provides emotional and informational support to families of children who have unique needs at birth.

Our network can help families access information about supports that maybe available to you, such as: 

  • ​Financial Assistance

  • Family Support

  • Early Intervention Services for your child and family