Designer Genes is made up of families, who have children and adults of all ages with Down syndrome, aspiring to offer each other friendship, support and a network to share information.
Being told your beautiful new baby has Down syndrome is not easy news. It is a time of strange emotions—happiness for your new baby, sadness and grief for the baby you thought you would have, and confusion about what the future will hold. Know there is no right or wrong way to feel, except love for this new life you created. Amazingly, each day the future will be brighter as you begin to realize all the wonderful things your child will do.
This packet of information is one of the ways we reach out to families of children with Down syndrome. We hope it provides some answers to many of the questions you may have.
Designer Genes holds activities throughout the year, including our annual Down syndrome awareness Buddy Walk each September. Our group is made up of many families who have individuals with Down syndrome of all ages, and we love to connect with new parents. Please don’t hesitate to contact us. We’re looking forward to meeting you and that new baby.